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Cancer patients report shortage of Herceptin

Deemed as the “drug that changed the breast cancer treatment landscape,” Herceptin has saved millions of women's lives globally

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by JOHN MUCHANGI

Health04 February 2025 - 15:09
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In Summary


  • This crisis has been worsened by the transition from the NHIF to the Social Health Authority (SHA), which has caused widespread disruptions in healthcare services.

Breast cancer treatment options

Women with breast cancer have reported that a life-saving drug, which was made widely available in Kenya through an NHIF deal two years ago, is no longer available in many treatment centres.

The drug, Herceptin, has saved lives of millions of women around the world and works by locking onto the roots the cancer cells. It then stops the cells from growing and kills them.

It was made widely available in Kenya in 2022 through a deal between the National Health Insurance Fund and the manufacturer Roche, where NHIF would cover the entire subsidised treatment cost.

But thousands of cancer patients across Kenya who need the drug on Tuesday complained they are struggling to access it.

This crisis has been worsened by the transition from the NHIF to the Social Health Authority (SHA), which has caused widespread disruptions in healthcare services.

This is according to the patients lobby, the Kenyan Network of Cancer Organizations (Kenco).

The lobby said Herceptin, which costs Sh100,000 per dose in private facilities, is out of stock in major public hospitals, including the Kenyatta National Hospital and the Kenyatta University Teaching and Referral Hospital.

The Social Health Authority currently covers only three cycles of the drug, but patients typically require 12 to 18 cycles for effective treatment. "Without Herceptin, thousands of women battling breast cancer are left with no hope," said Phoebe Ongadi, the Executive Director of Kenco, speaking on behalf of multiple cancer advocacy groups.

"Many patients have been turned away from public hospitals or forced to buy expensive medication from private pharmacies. This is unacceptable and puts lives at risk.”

The Star has contacted the KNH for response.

Ongadi said many patients who previously relied on NHIF for treatment are now being denied care or forced to pay out-of-pocket due to unclear SHA coverage. "We were assured of a smooth transition, but in reality, patients are suffering. Some are being turned away from treatment centres.”

She said another major issue is the lack of clear information on what SHA covers. Patients and even healthcare providers remain confused, leading to disruptions in chemotherapy, radiotherapy, dialysis, and other treatments. "There is no transparency. People don't know what SHA will pay for, and hospitals are refusing to treat patients without upfront payments," said Ongadi.

Technical problems with SHA’s system have also delayed treatment. Patients struggle with registration, logging in, and getting pre-authorisation for treatment, further endangering their health. "Cancer treatment is time-sensitive. Every delay increases the risk of the disease spreading," she warned.

Kenco also noted SHA’s budget allocation for chronic illnesses is insufficient to meet demand. This means that when a patient exhausts their SHIF coverage, they are left without options. The lack of funds also affects cancer screening services, limiting early detection efforts. "Prevention is better than cure, but without funding for screening, many cancers will go undiagnosed until it's too late," Ongadi said.

Diagnostic delays have also become a serious issue. The PET CT scan at Kenyatta University Teaching, Referral, and Research Hospital (KUTRRH) has long waiting periods, causing critical delays in diagnosis and treatment. "Doctors need scan results urgently to plan treatment, but patients are waiting too long, which reduces survival chances," Kenco explained.

The statement was supported by health NGOs Hennet, NCD Alliance-Kenya and Cancer Survivors Association of Kenya.

The groups are demanding immediate action from the government and SHA. Their key demands include restoring the availability of Herceptin and other essential cancer drugs in all public hospitals.

They also want continuous and uninterrupted access to cancer and NCD treatment for all patients.

They called for expanding radiotherapy services by maintaining machines, increasing capacity, and partnering with private hospitals.

The groups asked the state to provide clear, transparent information on SHA’s oncology and NCD coverage so patients know what services they are entitled to, and increasing SHA’s budget for chronic illnesses to support long-term care and cancer screening programmes.

The other demand is ensuring NHIF prepayments are automatically transferred to SHA, so patients are not forced to pay again for covered treatments.

"The government must act now. Every delay costs lives," Ongadi said.


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