Global and local Endometriosis experts and scientists have raised alarm over fake experts and misreporting of Endometriosis disease saying that it poses a serious health risk to the patients.
Speaking on Friday during the second East African Endometriosis conference, the experts led by the President of Endometriosis League Gynecologist and Fertility Expert Hans-Rudolf Tinneberg, global Endometriosis Ambassador Ezekiel Mecha, and others, said a lot needs to be done as a way of mitigating the disease.
“We need to do a lot so that we mitigate and control the disease, for instance, early diagnosis is highly recommended," said Tinneberg.
He said that Endometriosis scientists across the world are working day and night to try and get the solution to the disease adding that today the disease can be monitored and controlled if detected early.
He also said that the easy way of detecting the disease is through painful menstruation.
“Painful menstruation is a simple sign of endometriosis, let us be on a high alert. The disease needs to be taken seriously globally not just in Kenya,” he added.
He urged the media on the dangers of misreporting the disease urging the fourth estate to endeavour to get facts right.
“I urge the media to get the facts rights from the experts before reporting on the matter. A lot of people including patients are in pain and they want good information for their own use,” he added.
Ezekiel Mecha called on Kenyans to be on high alert not to fall prey to fake experts.
“Please let us be on high alert, there are fake Endometriosis experts who are out there trying to get money from this situation. I urge anyone who wants to get help to reach out to a qualified registered medical expert,” he said.
He said that currently, global scientists are doing a lot of research on the diseases so that they get a reprieve to the patient.
“A lot is being done in relation to the disease, we are working hard both locally and international so that we get a remedy to the disease. I thank the UON Vice-Chancellor Stephen Kiama for the support he has given to the researchers in the institution."
The conference was also attended by Endometriosis Warrior including Media personality Njambi Koika, Endometriosis of Kenya Founder Elsie Wandera, Doris Murimi, Endo Sisters East African Chief Executive officer and an Author, Joseph Njagi, the founder of Laprascopy, Mashinani and a medical expert, Laurine Wamaitha warrior, Leonida Kerubo, Kirinyaga University Vice-Chancellor among others.
Wandera while speaking at the conference called on collective responsibility in the war against Endometriosis.
Murimi called on the government to implement any policy that will help fight the disease.